Appointment with Hopkins surgeon

So today was a long appointment but we feel confident that this team is trying to assist her. Here is what we know. 

  • Biopsy is scheduled for Friday 
  • Her colon is twisted and it shouldn’t be 
  • Catheters will be done twice a day for a while. Even if surgery is scheduled this will still be needed as a daily routine of Addyson’s
  • New meds were given
  • We should have biopsy results by the end of next week
  • Genetics at Hopkins is leading for Hirschsprung’s disease and they will be involved in her case after biopsy results 
  • She is to stay on restricted diet

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