8 weeks in …what we have learned

Wow…we are 8weeks post surgery. We have learned a lot. Some are below:

  • This is a marathon not a sprint
  • Some great resources come from Facebook support groups!
  • Addyson still believes her surgeon can make her belly feel better
  • Granulomas are annoying and can keep coming back….they won’t go away. Watch out granulomas I plan to order granulotion to get rid of you
  • There will be many changes to the flush protocol, go with the flow
  • When she is sick her tube hurts
  • Venting is very important
  • You learn to vent discreetly
  • Many needed supplies are not covered

…and the list goes on but hope remains


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