Few more days until Hopkins

We have a few more days until our next Hopkins post surgery check. We are learning as we go. We have learned so much from other cecostomy moms!! Thankful for their insights and contact information. We would have been so lost without them.

We are learning that Addyson’s hip pain becomes aggravated when she isn’t vented enough. We are working with the school to ensure she is vented more.

I have a list of questions for our surgeon when we go back Wednesday. We are hoping for answers and clean X-rays. Only one month to go till the g tube gets inserted!! We can’t wait for the current tube to be replaced with the smaller mic key button!

We are #addysonstrong #beamingwithhope

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