So we have now received calls from both the hospitals we had reached out to for 2nd opinions. Here is what they are offering
Nationwide:
Only bowel management protocol (5day stay)
Boston Childrens:
4 day stay to include colon motility testing, a repeat colonscopy and updated anorectal manometery testing along with a full clean out
Now we have a decision to make. These decisions are difficult. Hopefully we can decide in the next few days on what we are going to do. Boston can see her in march, Ohio is over the summer
Beaming with hope 