Here is today’s X-ray. So not great, but not the worst we have seen. It is concerning that her colon is distended again (like it was while inpatient). We worked so hard on trying to get it to shrink down in size. She is still having trouble with air being trapped (we vent often). She is back to having bad hip pain today and now running a temp. They determined that the steroid cream was causing the irritation at the tube site and not that it was infected. We are now off the cream but we know this means another granuloma will be in the works for her. She can’t seem to keep them away even with every remedy tried.
She is keeping her spirits up and we go back at the end of the month.
Beaming with hope 