Addyson is 6 months post surgery and she is back at sports. She is not always 100% but tonight she is proud. She got her 1st hit during a game and got the game ball. She is #addysonstrong! 💚 she is scheduled to go back to Hopkins Wednesday to see her surgeon one more time before going to Boston in may! She has exactly 30 more days until we leave for Boston childrens hospital. While we are not 100% sure we will get a better treatment plan we do know she will get the motility testing that should give us some insight into what’s going on. We have to continue to wrap our heads around the fact that there isn’t a cure or fix just different management options to help keep her home vs inpatient
Beaming with hope 