we saw addysons surgeon today….xray is attached. It shows how distended her stomach is and the last 6 month of xrays show the same. Due to this, He thinks she has gastropersis. We will do some testing to confirm this. He thinks gi should start her on motility meds to help keep things moving better. We got some good Information from her surgeon and we will keep pushing forward! This is a slow journey but today we feel like we got good information to keep us moving in the right direction.
Beaming with hope 