17 more sleeps

Only 17 more sleeps till addyson goes to Boston children’s hospital. We are hopeful they can provide us with some kind of help. we have realized that addyson will never have 100% functioning intestines. We are hoping Boston can at least help with the motility. We have learned a lot over the past 6 months in regards to her disease and the signs her body shows. We understand how serious this can be. We just want a few more answers and we are hoping we can get them this month. Addyson has a few friends who she has met through Hopkins who are struggling as well right now. We are hoping they get better treatment plans! 💞

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