We just received the results of Addysons MRI. She does not have a tethered spinal cord. We did not suspect one but Boston wanted to be sure.
We also got the reading of her last xray which is that she has an above average amount throughout her colon and it’s from the ascending through the distal rectsigmoid part. 😔
We are waiting for gi at chop to help manage her flush protocol. I hope to hear from them this week.
We are also thinking of our other motility disorder friends. We wish you all a good week. Sofia we hope you can go home soon and that your dissension gets controlled