So today was not as bad as I prepared for
We have a list of things we need to get done in the next few days/weeks:
- Test for small intestine bacterial overgrowth
- Ultrasound for kidneys and liver
- Lab work
We agreed to pull her off the periactin and see what happens with the dizziness and pain piece.
She said stay on the flush protocol we are doing and keep pushing the ex lax, fiber gummies and cimetidine
She agreed that it’s worthwhile for us to go to chop and see neuro gi. She thinks they can help more with the motility piece. She says Hopkins will work with them for the care management piece.
Now off to see Connor
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Beaming with hope 