Today we received Addyson’s X-ray report from last Wednesday. She still has above average stool burden even with our flush protocol. She also has a rib deformity that was noted. I spoke to our care team. They think it’s a congenital abnormality. She also had a lot of hip pain today 😦 We spoke to chop today and they said we should hear from her dr there within the next 48hrs. 
We are beaming with hope…the kids have shown us to smile even when the sky is gloomy.
Beaming with hope 