Addyson has a busy week coming up
She had a cheer competition today. They all did amazing, 2nd place win!!!
Tomorrow she has three appointments (1 at chop then 2 at Hopkins)
Then Friday she has another round of vmt
Ethen has a Mt Washington appointment Wednesday
Overall she’s doing ok. We will know more after the scan on the 28th. We have an appointment shortly after that date to discuss the findings of the scan.
We have decided that we must keep chop in our back pocket even though it’s hard juggling between multiple hospitals. We must have a motility dr on her case. We will continue to find a way to make it work.
She was beyond happy to talk to her friend sofia this weekend. She was so relieved when she found out she was heading home!! Love their relationship. Addyson knows sofia went to children’s and Hopkins and she said mom even if sofia leaves Hopkins for children’s can we still talk all the time and see each other. I said of course. She said good…she’s my journey friend. I said I know. 💕💞 love hearing them talk and discuss their treatment.
Beaming with hope 