What is this is as good as Addyson’s s colon issues will ever be?
The real answer is I guess we will adjust….but the sad truth is that these kids are not getting the best treatments. They are getting enough treatment to keep living. They are getting enough to get by. The options are not ideal.
Tonight I put Her to bed with a bag hung. 🙁. our hope is to keep her out of the hospital.
We will continue to work with her team on pain management.
Beaming with hope 