New doctor

Got the call today that addysons doctor at Nih is letting go of patient care to do more research. While we are happy for her, we are sad. We have had this dr on her case since she was little. We have spent the last 5 years with this doctor. She knows addyson. She has watched her seize with 104 temps. She has answered our page at 10pm while in the emergency department at Hopkins. She provided us a clinical trial that actually helped addyson. She has watched her grow. She has talked Genetic mapping results with us and told us that addyson has a rare genetic disease. She is our friend. Our trusted medical provider. We trust her. But we know she will leave addyson in good hands

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