we finally have our first supply order being shipped!! This is a relief because we are down to 4 bags and this girl tends to use one bag per day. we tried something different last night so we will see if that helps to extend the life of the wafer. Hopefully it works. Her skin needs the rest from constant bag changes. Below are some pictures of her from school today and a little video of her trying to do her change by herself. 
We are beaming with hope…the kids have shown us to smile even when the sky is gloomy.
Beaming with hope 