We are home. Having some slight output issues but we will figure it out. We have to go back to chop on 17 July to see how the new meds and nj tube are working. We hope this provides the intake that she needs to keep her healthier. If the nj tube does it’s job she may get a g/j put in so we can remove the nj. Overall the drs are using the next few weeks and the new meds to see if we can get Addyson to get in enough intake orally but if not they have a plan.
We are so thankful to everyone who came up, checked in, sent e cards and who just help us through the day to day of juggling life. We really couldn’t do it without the help of our family and friends.
Beaming with hope 