Rough evening for miss addyson and some of those nights for many of our special friends. Her stomach is distended and output today has been a struggle. I spoke to her gi dr at chop who said go to local emergency department. They want xray to check for blockage. Overall I don’t think she has a true blockage. I think it’s a flare of the disease. She keeps asking where we can go for help. She doesn’t want to go to local er because they can’t really help and she said she doesn’t want us to have to drive to chop this late. She just wants help. We just want help for her and our fellow friends who are fighting this same battle.
Beaming with hope 