6 months post surgery

In the past 6 months since Addyson’s surgery she has learned a lot. She has taken the adjustments to her routine in stride.

she has learned her food restrictions
she has learned all her medication changes
she has learned all about her ostomy (type of ostomy, size of stoma)
she has learned which ostomy supplies she is allergic to
she has learned how to care for her skin / skin break down
she can identify a leak before it gets really bad
she has had a NG inserted
she has had her NG dislodged and reinserted a few times
she pulled her NG when we moved to the NJ
she helped us face our fear of reinserting the NG – we all stayed calm, and reinserted it without an issue.
She returned to school with a feeding tube
she has worked really hard on her hydration goals.
she has learned how to do her bag changes all by herself
she has faced multiple hospital stays that were mutliple days long
she has attended many outpatient appiontments
she has returned to tumbling and even gained new skills!
she has enjoyed the pool this summer – a huge fear we had
she has taught her brother how to help with her bag changes – we were unsure how he would take all of this. But she has guided him through it all.
she has embraced all the changes as well as we could have expected

She still has a long way to go – but we are so PROUD of what she has learned in 6 months! She met the new school nurse and she was able to provide the run down on her diagnoses, treatment plans, and emergency plans if needed.

We appreciate all the support through everything!!!

Here are some pictures from her surgery day