This week Addyson has two appointments on Tuesday. She has gi and psychology. We also got her schedule with a NEUROGENTICS dr for December. We started her keppra but haven’t seen any improvement yet. We really want to get her a seizure alert device but they are all so expensive. Cheapest option is $500 for monitoring plus $200 for device. We are trying to find other methods.
This time last year she was getting her gastric emptying test and sitz marker study done. Since then we have dealt with an ileostomy and NG and nj process, anti seizure meds, and other gi issues
Beaming with hope 