Neurogenetics appointment

Today’s appointment was long. Over two hours, but we got a lot discussed.

They clinics agree she has a mitochondrial disorder.

They are ordering a cooling vest for her for the summer months.

They ordered labs which we got done.

They are reanalyzing her dna for the mitochondrial issues and for a few other arrays

They are always working to set up the reoccurring IV fluid drip

There will be protocols in place now for every trip to the o.r.

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