Today’s appointment was long. Over two hours, but we got a lot discussed.
They clinics agree she has a mitochondrial disorder.
They are ordering a cooling vest for her for the summer months.
They ordered labs which we got done.
They are reanalyzing her dna for the mitochondrial issues and for a few other arrays
They are always working to set up the reoccurring IV fluid drip
There will be protocols in place now for every trip to the o.r.