Today’s appointment was long. Over two hours, but we got a lot discussed.
They clinics agree she has a mitochondrial disorder.
They are ordering a cooling vest for her for the summer months.
They ordered labs which we got done.
They are reanalyzing her dna for the mitochondrial issues and for a few other arrays
They are always working to set up the reoccurring IV fluid drip
There will be protocols in place now for every trip to the o.r.
Beaming with hope 