Update!! And a hockey tournament

Ethens having a blast at his hockey tournament. He showed amazing sportsmanship. We Even had a friend show up to watch one of his games!!!

We also got a call from chops mito clinic and they have accepted Addyson Into their program!!! Appointment isn’t till June but we knew it would be a wait. We are so glad to become part of their clinic where her care will become more of a team approach vs each specialty.

https://www.chop.edu/centers-programs/mitochondrial-disease-clinical-center

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