Ethens having a blast at his hockey tournament. He showed amazing sportsmanship. We Even had a friend show up to watch one of his games!!!
We also got a call from chops mito clinic and they have accepted Addyson Into their program!!! Appointment isn’t till June but we knew it would be a wait. We are so glad to become part of their clinic where her care will become more of a team approach vs each specialty.
https://www.chop.edu/centers-programs/mitochondrial-disease-clinical-center
Beaming with hope 