So one year ago we were wheeling Addyson into surgery for her ileostomy. While we have been inpatient a few times since surgery I think we are finally trending up.
Now today we spent the day in philly at chop for an appointment with the autonomic dysfunction program The dr was great and very knowledgeable. We were given a plan and we will follow up with her in two weeks to see how things are going. She is also going to talk to Addysons gi dr.
So blessed to have a friend by our side as we went to this appointment. These appointments are long and so much information is thrown out and it’s a lot to take in. Glad to have support!!
Beaming with hope 