We had a very knowledgeable appointment today with Addysons team. The surgeon explained the issue with her stoma and stomach muscles. He is very knowledgeable and has a fix. We got in Tuesday for surgery. She is getting her stoma revised, a g tube and a muscle biopsy for the mito. She will be inpatient for a few days. Hoping to be home Thursday or Friday so she can still have her birthday parade Saturday!!!! I will update everyone about the parade on Thursday once we have a definite time on discharge home.
Tomorrow is another long day with the team but then we are done for a while!!!!!
Beaming with hope 