We have been home from philly for a new nights. We are trying hard to establish our new routine with meds and her pump schedule. She’s doing great though. She’s standing straighter each day. The pain is lessening and her energy level is returning nicely. Addyson pushed her morning meds through her tube by herself today.
She had a great birthday weekend from the drive by parade to cake/ice cream. We appreciate all the love and support.
Beaming with hope 
Hope the family is well! Can you include more photos of Addyson’s stoma? Always wondering how that’s doing, and when she is having issues such as swelling it helps to visualize what she is going through. In fact, more photos in general! Love the blog. Take care xox
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I can certainly try. I try not to post stoma pictures. Some are graphic. Not everyone wants to see it. I will try to share more pics of her
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