A few night home

We have been home from philly for a new nights. We are trying hard to establish our new routine with meds and her pump schedule. She’s doing great though. She’s standing straighter each day. The pain is lessening and her energy level is returning nicely. Addyson pushed her morning meds through her tube by herself today.

She had a great birthday weekend from the drive by parade to cake/ice cream. We appreciate all the love and support.

2 thoughts on “A few night home

  1. Hope the family is well! Can you include more photos of Addyson’s stoma? Always wondering how that’s doing, and when she is having issues such as swelling it helps to visualize what she is going through. In fact, more photos in general! Love the blog. Take care xox

    Liked by 1 person

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