We have been home from philly for a new nights. We are trying hard to establish our new routine with meds and her pump schedule. She’s doing great though. She’s standing straighter each day. The pain is lessening and her energy level is returning nicely. Addyson pushed her morning meds through her tube by herself today.
She had a great birthday weekend from the drive by parade to cake/ice cream. We appreciate all the love and support.