Pretty quiet week. Addyson has one appointment this week at kki. Went as expected. Her dr added a med for the start of the school year. Fingers crossed it helps.
We got the phone call that she will have an eye appointment and ekg at chop on sept 11th. We will also have her next AADP clinic appointment oct 2nd and then mito clinic appointment is schedule for early December.
Addyson spent the day turning her beads of courage into a wind chime. We left room so we can continue to add beads as she gets them.
The kids are going to be so excited for the beads of courage dream bowls. They are handcrafted!!
If anyone deserves “Beads of Courage” it’s Addyson.
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If anyone deserves “Beads of Courage” it’s Addyson. You go girl.
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Awe thank you. She really does! All the beads of courage kids are super brave!!!
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