Rough pots day

Addyson had a rough start to her day due to her pots. Hopefully tomorrow will be better. We have a few appointments coming up for her (gi and autonomic dysfunction program clinic day). We also expect that she will need a few tests/procedures) in the next week or so. Hoping we can get these done quickly so we can have a definitive answer on a possible additional diagnosis. It hit hard today that even though we are doing everything we are supposed to be for her pots that doesn’t matter because She will still flare and when she does there is no stopping it. It happens quickly and without any real warning. the girl is on so many things to try to minimize the flares —-yet they are just as severe as they were a year ago and this is with e learning vs classroom learning. This is with the added hydration and extra meds.

7 thoughts on “Rough pots day

    1. Postural Orthostatic Tachycardia Syndrome (POTS) POTS is a form of dysautonomia that affects the flow of blood through the body. symptoms include:
      Headaches
      Nausea
      Abdominal pain
      Chronic Pain (General)
      Chest Pains
      Heart Palpitations
      Fatigue
      Shortness of Breath
      Insomnia
      Brain Fog
      Sweating Abnormalities
      Weakness
      Bladder Dysfunction
      Tremors

      https://myheart.net/pots-syndrome/

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      1. It’s rough on top of all the other stuff but we thought we had found a good set of meds/ fluids to help but today it hit full force Like it wanted to show us it’s still there

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