We spoke to Addysons gi today regarding testing for mals. He said let’s wait and discuss with the complex care / AADP team next week. He said that many times the test comes back inconclusive. He also said that they see more kids who suffer from problems with the surgery than kids who receive relief from the surgery.
We also discussed mcas. He said we could go ahead and treat that because it’s just a change in one of her meds and then adding in Zyrtec which will help with allergies anyway so that’s fair.
He is also changing her reflux meds and adding in an additional med we discussed a while back but had held off on.
We discussed her pots and her autonomic dysfunction in general. Autonomic dysfunction can be so difficult to manage. We talked again about how her nervous are damaged and that’s why they misfire. He said we can use anti spasmatics for the rough days where quality of life are diminished.
The ANS (autonomic nervous system)provides the connection between your brain and certain body parts, including internal organs. For instance, it connects to your heart, liver, sweat glands, skin, and even the interior muscles of your eye.
The ANS includes the sympathetic autonomic nervous system (SANS) and the parasympathetic autonomic nervous system (PANS). Most organs have nerves from both the sympathetic and parasympathetic systems.
The SANS usually stimulates organs. For example, it increases heart rate and blood pressure when necessary. The PANS usually slows down bodily processes. For example, it reduces heart rate and blood pressure. However, the PANS stimulates digestion and the urinary system, and the SANS slows them down.
The main responsibility of the SANS is to trigger emergency responses when necessary. These fight-or-flight responses get you ready to respond to stressful situations. The PANS conserves your energy and restores tissues for ordinary functions.
What is autonomic dysfunction?
Autonomic dysfunction develops when the nerves of the ANS are damaged. This condition is called dysautonomia. Autonomic dysfunction can range from mild to life-threatening. It can affect part of the ANS or the entire ANS. Sometimes the conditions that cause problems are temporary and reversible. Others are chronic, or long term, and may continue to worsen over time.
Symptoms of autonomic dysfunction
Autonomic dysfunction can affect a small part of the ANS or the entire ANS. Some symptoms that may indicate the presence of an autonomic nerve disorder include:
Orthostatic intolerance is a condition whereby your body is affected by changes in position. An upright position triggers symptoms of dizziness, lightheadedness, nausea, sweating, and fainting. Lying down improves the symptoms. Often this is related to an improper regulation of the ANS.
Beaming with hope 