This has been a difficult emotional week for me. I’ve been stressed about where we are with Addyson and her health. It seems like we are three steps forward and four steps backwards every day. It’s a constant juggle. Sometimes I just get mad. I’m mad she can’t just be like a regular kid. No meds. No tubes. No bags. No pump. No syringes. No timers no seizures no nausea, dizziness etc. I wish we could just be for the day I wish she could have a great day without having it all come crashing down that night. I wish I wasn’t angry at times. I wish it wasn’t Grief but it is. I grieve for the normal we all wish we had.

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