So today we waited and waited for Addysons gi to show up for our appointment. He’s great and really good but that often means we sit and wait hrs later than our appointment time for him to show up. But the good news is he never rushes us. He takes an hour or more with us every time.
Tonight was no different. We spent time discussing everything and where she currently is and what she wants and the appointment went how we wanted.

Addyson will be having another surgery soon but hopefully it will work and she will be able to hold nutrients better.

We know this surgery is going to be different because visitors won’t be allowed because of covid restrictions. No grandparents or siblings 😞 but hopefully the stay won’t be too long. We should know a surgery date next week.