Mito team and sleep study

Busy busy day. We went from Addysons mito appointment to her sleep study. We got lots covered during Addysons mito appointment.

• ct Ordered for head

• kidney u/s ordered

• whole genome sequencing ordered

• new cooling vest ordered

• discussion on picc line vs port

• discussed labs (infusions beginning soon) some labs were very abnormal

• discussed eye tracking issue

• and more

Then we headed straight to kki for sleep study. That’s been a mess in its own but that’s ok we are getting it all worked out. KKIs security guards & techs have been beyond amazing.

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