Busy busy day. We went from Addysons mito appointment to her sleep study. We got lots covered during Addysons mito appointment.
• ct Ordered for head
• kidney u/s ordered
• whole genome sequencing ordered
• new cooling vest ordered
• discussion on picc line vs port
• discussed labs (infusions beginning soon) some labs were very abnormal
• discussed eye tracking issue
• and more
Then we headed straight to kki for sleep study. That’s been a mess in its own but that’s ok we are getting it all worked out. KKIs security guards & techs have been beyond amazing.
Beaming with hope 