First appointment of this set went as expected. Rheumatology changed dosage on addysons fever meds since in 6 months she’s had 6 fever episodes. He is hopeful this bump up will stop the flares. If it doesn’t work then we are to call and discuss another option.
Tomorrow is the big day- aadp clinic. Hours of appointments with her whole team.
Addysons favorite part of the day was dinner at her favorite restaurant and arriving at the cottage and see Luna (the camel) 🐪
Beaming with hope 