We spoke to addysons motility gi Dr tonight. We have a plan going forward for testing next month when she flares.
He also said every xray during a flare has shown a functional ileus. He wants to help us get better control on those. We don’t want to be an ileus mode every month.
So next month when she flares again we will get lots of lab work on day 1 to try and rule a few things out and help us pinpoint the issue. Gi believes this is her having autonomic dysfunction flares. Just sucks cause we thought she was better controlled
Beaming with hope 