It’s so hard. You look at pictures and it looks like she’s had a great week. However it’s been a week of struggle. Her gi system is not working with us at all this week. Every day has been a struggle of what to feed her, when to feed her, when to pump, when to flush… How much? At what rate? She got so dizzy and pale and clammy today. We just don’t know what to do to help… We will try again tomorrow..
We had a bunch of labs run. We are waiting on two more but so far we know, no cdiff which is good! So for tonight we try our best and hope tomorrow is better
Beaming with hope 