And the appointment went….

So today we waited and waited for Addysons gi to show up for our appointment. He’s great and really good but that often means we sit and wait hrs later than our appointment time for him to show up. But the good news is he never rushes us. He takes an hour or more withContinue reading “And the appointment went….”

Tomorrow’s appointment

Addyson has an appointment tomorrow that will hopefully go the way we want it to go. If so, it will be a pretty big surgery but hopefully get her on a better track. Things have been stable. Her ostomy is functioning. Gi wise she’s doing good. Seizures are controlled. Pots is stable (her new doctorContinue reading “Tomorrow’s appointment”

Loving the new dr on our team

I cannot express how grateful we are for the new dr on Addysons team. He is amazing. He checks in on her all the time. He shuts down his clinic so he has time to see her without being rushed. He has the best bedside manner and truly cares about his patients and their families.Continue reading “Loving the new dr on our team”

Update

AADP: overall was good. We have to redo her lab work next week because some of her lab levels were low so they want to recheck them. We still need her bp to come up so we are monitoring that closely. If her electrolytes don’t improve with the next blood drawl we will have toContinue reading “Update”