Category Archives: Uncategorized

Lots of throw up here. Addyson keeps throwing up after the doses of oral antibiotics. We asked if it could be given by Iv but it can’t it needs to coat her stomach for surgery. Besides that she is doing well. Tons of meds pushed to clean her out but no poop yet. She’s beenContinue reading “Admitting day”

Thank you love quilts for Addyson’s quilt. We cannot thank you enough. The smile this quilt is bring to her face will be remembered forever. Each square was stitched by a different person. 💕 Thank you Pam, Joyce, Lisa, patty, Fran, Susie, Pam, kris, Karen, Pam, jean, Sandra, patsy, sally and Joan

So from 2-4 today everything went hectic between Ethens dentist appointment (thanks mom and dad) then Ethens doctors visit and then a million phone calls between school and surgeon and hospital teacher. Trying to get everything figured out after they told us she may be getting admitted Monday.  Here’s what we know: We will knowContinue reading “Today went hectic”

X-ray taken….with Addyson’s Favorite Xray tech. Addyson and the tech share the same birthday and the tech has been there for some of Addyson’s other procedures. The tech remembered her right away. Addyson always tells her that she stole her birthday, I keep trying to tell Addyson I think she stole the tech’s (since sheContinue reading “Post surgical followup”

I am trying to do my best to keep everyone up to date on Addyson. Here is the latest from Friday. Friday’s procedure went well, the surgeon is confident that he got a good biopsy. We should have those results by Wednesday. Addyson goes back to see him next Wednesday to discuss next steps. HeContinue reading “To catch everyone up”

So today was a long appointment but we feel confident that this team is trying to assist her. Here is what we know.  Biopsy is scheduled for Friday  Her colon is twisted and it shouldn’t be  Catheters will be done twice a day for a while. Even if surgery is scheduled this will still beContinue reading “Appointment with Hopkins surgeon”

This is a great video to explain Hirschsprung’s disease.  You tube Hirschsprung’s disease

Just add on the scare…. now we are also being told to go back to genetics to seek more information because we could be missing something else due to Addyson having multiple congenital abnormalities 

We finally received a diagnosis for Addyson  What causes Hirschsprung disease?It’s not clear what causes Hirschsprung’s disease. It sometimes occurs in families and might, in some cases, be associated with a genetic mutation. Hirschsprung’s disease occurs when nerve cells in the colon don’t form completely. Nerves in the colon control the muscle contractions that moveContinue reading “Hirschsprung disease”

We finally got the results of Addyson’s procedure she had done in august. This was a manometry test. The two things pointed out was that she failed the balloon expulsion test and RAIR (recto-anal inhibitory reflex) was not present (it should be). We have an upcoming appointment at a motility clinic on the 2nd. KeepingContinue reading “Procedure results “