Here is a list of Charity/Non Profit organizations. We have used many of them. They have all been so helpful through our journey. Just wanted to pass along as they can be very helpful.
Casey cares: https://www.caseycares.org/
The Casey Cares Foundation provides ongoing, uplifting programs with a special touch to critically ill children and their families.
Love Quilts: They make quilts for kids who are chronically ill. http://www.lovequiltsusa.com
Feel Better Friend: Handmade dolls for chronically ill children. http://fbfdolls.org/
Shadow buddies: https://www.shadowbuddies.org/
Project Linus: https://www.projectlinus.org/
Songs of Love Foundation: http://www.songsoflove.org/ A parent, legal guardian or hospital staff can request a FREE song for a specific child.
Gracies Gowns: Personalized hospital gowns. http://www.graciesgowns.org
Beads of Courage. Through the program children tell their story using colorful beads as meaningful symbols of courage that commemorate milestones they have achieved along their unique treatment path http://www.beadsofcourage.org
Hannahtopia: They make personalized EEG Caps
Brave Gowns: https://www.bravegowns.com/
Our gowns are the perfect way to bring comfort and fun when patients have to get something scary done! We use our fun designs to give everyone a little hope and normalcy at a time they need it most.
SuperHero Project: https://www.superheroprojectkids.org/home
Artists will call and talk to your child and make custom drawings/paintings for them.
The Parker Lee Project: theparkerleeproject.org The parker lee project provides medically supplies to families in need.
Best Day Foundation: https://bestdayfoundation.org/
Best Day Foundation is a volunteer organization that helps children and young adults ages 4 -24+ with special needs build confidence and self-esteem through safe, fun, adventure activities like surfing, bodyboarding, kayaking, snow sports, and more. Please join us in creating special days for children with Autism, Down syndrome, Cerebral Palsy, blindness, cancer, spinal cord injuries, and other physical and developmental challenges.
Provides superhero capes to kids with chronic illnesses / medical complexities.
Girls Chronically Rock: https://girlschronicallyrock.com/
Promoting self Love & confidence in the disabled community
Girls with Guts: https://www.girlswithguts.org/
Children with Hair Loss: https://www.childrenwithhairloss.us/forms_assets/Hair-Donation-Form.pdf
Provides wigs to kids 21 and under for free.
Tubie friends: https://tubiefriends.com/main/
Tubie woobies: g tube products https://www.tubiewhoobies.com
G tube belts & products: https://lilbayouboutique.com/collections/g-tube-belts
NG tube resources: https://www.feedingtubeawareness.org/nasal-tubes/
Team impact: https://www.teamimpact.org/
BECAUSE NO CHILD SHOULD BE SIDELINED BY SICKNESS
Project big: https://projectbig.org/
Wish Granting Foundations:
Children’s Wish Foundation International – Wish Coordinators make up a professional team with over 20 years of experience in creating unique, carefree wishes that, depending on the type of wish, include all travel arrangements, accommodations, tickets, full detailed itineraries, expense money, volunteer support, carefully planned presentations to fit the family’s schedule, and the promise of lots of surprises along the way.
Hope Kids – This charity hosts regular events and activities (a “never-ending” wish) that help restore hope for the future. Hope Kids also provides a support community for children with advanced illnesses and their families. HopeKids hosts free, fun events for families who have a child with a life-‐threatening medical condition.
Kids Wish Network – The Kids Wish Network grants wishes for children who are between 3 and18 years old. The organization’s “Our Hero” program also provides wishes for children who have overcome life-altering circumstances and endured great pain and suffering.
Make-a-Wish Foundation – The nation’s largest wish-granting organization, Make-a-Wish fulfills the wishes of children between 3 and 18 years old with life-threatening medical conditions, aiming to “enrich the human experience with hope, strength, and joy.” The organization accepts referrals from health care professionals and parents, and children can even nominate themselves.
The Marty Lyons Foundation The foundation helps grant wishes for children with advanced illnesses. The Marty Lyons Foundation (MLF) fulfills the special wishes of children, ages 3 to 17 years old, who have been diagnosed as having a terminal or life-threatening illness by providing and arranging special wish requests. The Foundation has Chapters in 13 states – Alabama, Connecticut, Florida, Georgia, Maryland, Massachusetts, New Jersey, New York, North Carolina, Pennsylvania, South Carolina, Texas and Virginia.
Nicki Leach Foundation – We provide financial assistance to teenagers and adults between 18 and 30 years old who have advanced cancer. The applicant’s oncologist must confirm diagnosis.
The Rainbow Connection – This organization helps grant wishes to children from Michigan facing an advanced illness. To qualify, children must be between two and a half and 18 years old, live in Michigan, be diagnosed with an advanced illness, and have the diagnosis verified by a physician. In addition, they must not have received a wish fulfillment from any other organization.
A Special Wish Foundation – This foundation grants wishes for infants, children, and young adults younger than 21 years old who have been diagnosed with an advanced illness.
Hugs & Hope: An organization committed to sharing joy and love with sick children and their families by encouraging and comforting them through “happy mail,” goodie packages, wish granting, balloon bouquets, Christmas gifts, and more. http://www.hugsandhope.org/
Hugs & Hope
P.O. Box 56
Harshaw, WI 54529
Jonah & The Whale Foundation, Inc: Helping Families of Disabled & Chronically ill Children
P.O. Box 981
Mars, PA 16046
Make A Child Smile (MACS): http://www.makeachildsmile.org
Make A Child Smile, is a non-profit organization that provides emotional and financial support to critically ill children and their families. Visitors to the site can participate by sending the featured children cards, letters, and small gifts through postal mail.
Brave Kids: Our mission is to help children with chronic, life-threatening illnesses or disabilities.
1510 11th Street, Suite 203, Santa Monica, CA 90401
Phone: (310) 395-5474
Web: http://www.bravekids.org / Email: firstname.lastname@example.org