Telemed appointment

So today we had a telemed appointment with Addysons gi motility dr. He had us concerned because he called two days ago and said we needed to meet to discuss her lab work. We had not yet see her lab results so we were unsure of what we needed to discuss. Anyway ….turns out he’sContinue reading “Telemed appointment”

Busy week ahead

We have a busy week coming up. Both kids have their kki appointments Ethen has his behaviorist Addyson has her home hospital teaching Randy has a dentist appointment And we are heading back to chop for two full days of appointments. We have clinic appointments with the mito team and the AADP team. We areContinue reading “Busy week ahead”

Weekend catch up

This weekend Ethen played and played with a friend. They played virtually but they interacted the whole weekend through the phone while playing the game. They took turns talking, they communicated throughout the game to work together and trade items and help find other items. They really had fun. It was so great to hearContinue reading “Weekend catch up”