Busy week ahead

We have a busy week coming up. Both kids have their kki appointments Ethen has his behaviorist Addyson has her home hospital teaching Randy has a dentist appointment And we are heading back to chop for two full days of appointments. We have clinic appointments with the mito team and the AADP team. We areContinue reading “Busy week ahead”

Busy days

Today was another busy day. I had a drs appointment, then had to go get new glasses, sorted tree drive items, followed by Addysons dr appointment then her tumbling which was followed by her home hospital tutoring. No down time here! Today we spoke to a surgeon we trust about mals and what would beContinue reading “Busy days”

…and softball is over

And just like that softball is over. So grateful she got to play this season. She had a blast and made friends. She even pitched in the last two games. Her pitching today improved from last week! We are grateful that she has a team at CHOP that have been focusing on her want toContinue reading “…and softball is over”